I am rare or undiagnosed.
I have a condition or illness that is considered to be rare or undiagnosed by the medical field. I want to connect with others dealing with the same situation and join efforts to find a diagnosis, treatment, and cure.
I am a family member.
I have a child, brother, sister, parent, or other loved one that is dealing with a rare or undiagnosed disease. I want to find others to join this fight with and find out everything I can about what is going on and make my loved one’s life better.
I am a healthcare professional.
I am a qualified practitioner of medicine and I am eager to learn more about the rare and undiagnosed community. I have treated or anticipate treating many patients from this world.
I am a researcher or geneticist.
I conduct organized and systematic investigations in the health or medical world in order to better the lives of all of us. I want to gain access to a plethora of data and find solutions for the rare and undiagnosed world.
I am an advocate.
I am close to the rare and undiagnosed world – I have a friend, colleague, neighbor, etc. who is battling a rare or undiagnosed disease. I want to join this fight – make a difference and help save lives.
Sharing. Connecting. Finding answers.
A homebase for the rare community’s diagnostic odyssey.
Our mission is to provide a central platform for the rare and undiagnosed community, bringing together its six key demographics in their collective search for diagnoses, treatments, and cures.